ethique_confidentialité

Balancing Patient Privacy and Healthcare Innovation: Addressing Trust and Ethical Concerns in Patient-Reported Outcome Data

Sat, 21 Jun 2025 08:22:11 +0000

Author Names: Tocci D.R.,Davey J.,Quintana Y.

Database Source: Embase Weekly Updates

Journal Title: American Journal of Health-System Pharmacy

Article Title: Balancing Patient Privacy and Healthcare Innovation: Addressing Trust and Ethical Concerns in Patient-Reported Outcome Data

Year: 2025

Issue: Supplement 1

Volume: 82

Abstract: Purpose: This scoping review aims to analyze the ethical challenges and trust concerns associated with sharing Patient-Reported Outcome (PRO) data in the context of big data and digital health. The review explores how balancing medical innovation with patient privacy and trust affects patient willingness to share data. By identifying gaps in current understanding and tools, the study emphasizes the need for robust privacy protections, transparent data usage, and improved consent models. The ultimate goal is to highlight the urgency of developing validated scales to measure patient trust in data sharing, informing policy and fostering patient confidence. <br/>Method(s): A scoping review was conducted following the Arksey and O'Malley framework, enhanced by PRISMA-ScR guidelines, to systematically synthesize existing research on balancing patient-reported data integrity and privacy within the healthcare context. A comprehensive literature search was performed using PubMed, CINAHL, and SCOPUS databases, focusing on studies published within the last ten years that examined patient attitudes towards privacy, data ownership, consent, and ethical concerns in using PRO data. Inclusion criteria were empirical studies that evaluated implementations of systems with an ethical focus on PRO data use, addressing privacy, confidentiality, or data ownership. Excluded were review papers, non-peer- reviewed articles, and studies outside the specified date range. The review prioritized prospective data collection methods to reflect current patient perspectives in the evolving digital health landscape. Data extraction captured key patient concerns, which were analyzed to identify common themes, with a focus on demographic variations. Two independent reviewers conducted the screening and full-text review, ensuring accuracy and consistency in data analysis. <br/>Result(s): The review identified that patient concerns about privacy, data ownership, informed consent, and commercialization significantly influence their willingness to share PRO data. Privacy and security emerged as primary factors in increasing patient trust, with studies showing that strong protections and transparent consent processes encourage data sharing. However, gaps were noted in the availability of validated scales to measure patient trust in PRO data sharing, which hinders the development of effective strategies to address patient concerns. Additionally, disparities in data sharing were observed across different demographic groups, particularly among underrepresented populations, raising ethical concerns about equity and inclusivity in healthcare research. The review underscores the need for a comprehensive, validated scale to measure patient trust, which would support targeted interventions, inform policy-making, and enhance the reliability and generalizability of research findings. <br/>Conclusion(s): This scoping review highlights the critical need for addressing ethical and trust concerns in sharing PRO data. Robust privacy protections, transparent data usage, and improved consent models are essential to fostering patient confidence. The review calls for the development of a validated scale to measure patient trust in PRO data sharing, which would enable more effective, equitable, and ethically sound healthcare research. By prioritizing patient trust, the healthcare industry can better leverage PRO data to drive innovation while respecting individual privacy rights.

A Review on Navigating Ethical Challenges in Modern Radiology: Balancing Artificial Intelligence Integration and Patient Privacy

Sat, 21 Jun 2025 08:22:11 +0000

Author Names: Bharadwaj S.,Vaidya S.,Parihar P.S.

Database Source: Embase Weekly Updates

Journal Title: Journal of Clinical and Diagnostic Research

Article Title: A Review on Navigating Ethical Challenges in Modern Radiology: Balancing Artificial Intelligence Integration and Patient Privacy

Year: 2025

Issue: 6

Volume: 19

Abstract: Artificial Intelligence (AI) in modern radiology has increased efficiency and accuracy, but it has also raised ethical questions regarding privacy and equitable healthcare delivery. AI systems rely on enormous databases containing sensitive information, making it crucial to ensure data anonymisation and compliance to maintain patient confidentiality. Nonetheless, genuine anonymisation remains challenging, especially with the rising complexity of data reidentification tools. Furthermore, AI systems may unintentionally perpetuate biases present in training datasets, raising concerns about the fairness and veracity of diagnostic results. The opacity and interpretability of AI models hamper ethical decision-making. The present review emphasises the importance of a multidisciplinary approach to addressing these ethical challenges, urging collaboration among radiologists, ethicists, technologists, and lawmakers. Strategies like robust regulatory frameworks, ongoing education, and the development of explainable AI systems are essential for ensuring the responsible integration of AI. By combining innovation with ethical responsibility, radiology can realise AI's transformative potential while prioritising patient-centred care.<br/>Copyright © 2025 JCDR Research and Publications Pvt Ltd. All rights reserved.

Ethical Privacy Framework for Large Language Models in Smart Healthcare: A Comprehensive Evaluation and Protection Approach

Wed, 04 Jun 2025 00:00:00 +0000

IEEE J Biomed Health Inform. 2025 Jun 4;PP. doi: 10.1109/JBHI.2025.3576579. Online ahead of print.

ABSTRACT

The increasing integration of large language models (LLMs) in healthcare systems has revolutionized medical service delivery while introducing privacy vulnerabilities that could compromise patient information. Traditional privacy-preserving approaches often degrade performance in healthcare applications. This paper presents HELP-ME, a framework for evaluating and protecting privacy in healthcare-oriented LLMs through a three-stage approach. First, we develop a systematic ethical privacy threat assessment methodology that identifies potential vulnerabilities in medical data handling. Second, we propose a prompt-focused privacy evaluation mechanism for healthcare scenarios. Finally, we introduce a robust ethical privacy obfuscation method that protects patient data while maintaining model utility. Experiments on the MIMIC-IV dataset demonstrate that HELP-ME achieves model source inference accuracy of 98.2%, clinical record length analysis accuracy of up to 98.5%, and maintains 96.9% diagnostic accuracy in synthetic data generation. The results indicate that HELP-ME provides a practical solution for protecting privacy in healthcare LLM applications while preserving clinical functionality.

PMID:40465443 | DOI:10.1109/JBHI.2025.3576579

God and the Possibility of a Moral Right to Privacy

Thu, 29 May 2025 00:00:00 +0000

Sophia. 2025;64(2):339-344. doi: 10.1007/s11841-024-01057-3. Epub 2025 Feb 8.

ABSTRACT

In their Unfit for the Future, Ingmar Persson and Julian Savulescu argued that there is no moral right to privacy, which resulted in a string of papers. This paper addresses their most recent contribution, arguing that-contrary to their claims-there is no conflict between God and a moral right to privacy.

PMID:40438293 | PMC:PMC12106543 | DOI:10.1007/s11841-024-01057-3

Ethical and privacy challenges of integrating generative AI into EHR systems in Tanzania: A scoping review with a policy perspective

Thu, 22 May 2025 00:00:00 +0000

Digit Health. 2025 May 20;11:20552076251344385. doi: 10.1177/20552076251344385. eCollection 2025 Jan-Dec.

ABSTRACT

OBJECTIVES: This study examines the ethical and privacy challenges of integrating generative artificial intelligence (AI) into electronic health record (EHR) systems, focusing on Tanzania's healthcare context. It critically analyses the extent to which Tanzania's Policy Framework for Artificial Intelligence in the Health Sector (2022) addresses these challenges and proposes regulatory and practical safeguards for responsible generative AI deployment.

METHODS: A systematic scoping review was conducted using PubMed, IEEE Xplore, Scopus and Google Scholar to identify relevant studies published between 2014 and 2024. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guidelines informed the search and selection process. Fourteen studies met the inclusion criteria and were thematically analysed to identify key ethical and privacy concerns of generative AI in healthcare. Moreover, a policy analysis of Tanzania's AI framework was conducted to assess its alignment with global best practices and regulatory preparedness.

RESULTS: The review identified six key ethical and privacy challenges associated with generative AI in EHR systems: data privacy and security risks, algorithmic bias and fairness concerns, transparency and accountability issues, consent and autonomy challenges, human oversight gaps and risks of data re-identification. The policy analysis revealed that while Tanzania's AI framework aligns with national health priorities and promotes capacity building and ethical governance, it lacks generative AI-specific guidelines, regulatory clarity and resource mobilisation strategies necessary for healthcare settings.

CONCLUSION: Integrating generative AI into Tanzania's EHR systems presents transformative opportunities and significant ethical and privacy risks. Tanzania's policy framework should incorporate AI-specific ethical guidelines, operationalise regulatory mechanisms, foster stakeholder engagement through participatory co-design and strengthen infrastructural investments. These measures will promote ethical integrity, enhance patient trust and position Tanzania as a regional leader in responsible AI use in healthcare.

PMID:40400763 | PMC:PMC12093014 | DOI:10.1177/20552076251344385

Data Sharing's Different Meanings: A Hierarchy of Privacy and Ethical Challenges

Sat, 17 May 2025 00:00:00 +0000

Stud Health Technol Inform. 2025 May 15;327:989-990. doi: 10.3233/SHTI250520.

ABSTRACT

Clinical data sharing is common for patient care, research, public health, and innovation. "Data sharing" is often ambiguous and multifaceted-involving ethical, legal, and social issues. We developed a six-tiered hierarchy, DaSH, explicating data sharing's risks and ethical complexities for patient data privacy.

PMID:40380627 | DOI:10.3233/SHTI250520

Exploring Ethics: Understanding the Role of Privacy Policies and Institutional Review Boards in Digital Health Companies

Fri, 16 May 2025 00:00:00 +0000

J Med Internet Res. 2025 May 16;27:e70711. doi: 10.2196/70711.

ABSTRACT

Research efforts are growing rapidly in the digital health industry, but with this growth comes increasing ethical challenges. In this viewpoint paper, we leverage over 20 years of combined experience across academia, industry, and digital health to address critical issues related to ethics, specifically privacy policies and institutional review board compliance, which are often misunderstood or misapplied. We examine the purpose of privacy policies and institutional review boards, provide brief examples where companies faced legal and ethical consequences due to shortcomings, and clarify common misconceptions. Finally, we offer recommendations on how digital health companies can improve their ethical practices and ensure compliance in a rapidly evolving landscape.

PMID:40378409 | PMC:PMC12101787 | DOI:10.2196/70711

Relational Ethics in Psychotherapy and Counselling Private Practice: solidarity, compassion, justice.

Thu, 01 May 2025 04:00:00 +0000

Therapy Today; 05/01/2025
(AN 184493983); ISSN: 17487846
CINAHL Complete

Privacy Is Ethical Concern with Suicide Research Recruitment in ED Setting.

Thu, 01 May 2025 04:00:00 +0000

Medical Ethics Advisor; 05/01/2025
(AN 185140576); ISSN: 08860653
CINAHL Complete

An Ethical Approach to Genomic Privacy Preserving Technology Development

Wed, 09 Apr 2025 00:00:00 +0000

Proc (IEEE Int Conf Healthc Inform). 2024 Jun;2024:638-641. doi: 10.1109/ichi61247.2024.00102. Epub 2024 Aug 22.

ABSTRACT

Demand for genomic research data and genetic testing results from cancer patients has grown exponentially. When a patient is diagnosed with a hereditary cancer syndrome, standard practice is for providers to encourage patients to discuss their results with their relatives and encourage those relatives to have clinical genetic testing and possibly participate in genetic research. Genomic research data and genetic testing results are being shared and connected in ways never imagined. Genomic data sharing is critical for advancing precision health and increasing diversity in global genome databases. However, these advancements often come with undesirable consequences, which call for additional privacy safeguards and research practices to protect hereditary cancer patients and their families because relatives who may have genomic information in common with the patient causing privacy risks to ripple throughout a kinship network. We propose to address this gap using an interdisciplinary approach integrating bioethical principles (autonomy, non-maleficence, beneficence, respect for persons, and equity) with data science techniques to mitigate privacy risk challenges.

PMID:40200994 | PMC:PMC11976530 | DOI:10.1109/ichi61247.2024.00102

Everyday ethics: Privacy and trust.

Tue, 01 Apr 2025 04:00:00 +0000

American Nurse Journal; 04/01/2025
(AN 184375990); ISSN: 26899272
CINAHL Complete

Privacy Protection for Open Sharing of Psychiatric and Behavioral Research Data: Ethical Considerations and Recommendations

Thu, 20 Mar 2025 00:00:00 +0000

Alpha Psychiatry. 2025 Feb 28;26(1):38759. doi: 10.31083/AP38759. eCollection 2025 Feb.

ABSTRACT

Data sharing within psychiatric and behavioral research represents a novel application of ethical principles in practice; however, it suffers from a dearth of practical experience and established ethical norms. In this study, we comprehensively examined the ethical considerations surrounding the acquisition, management, sharing, and utilization of such data. We graded sensitive data and suggest ethical standards for privacy protection based on varying levels of data sensitivity. The objective of this study is to foster orderly and standardized open sharing of psychiatric and behavioral research data, thereby advancing the development and progress of related academic disciplines in China. This Chinese expert consensus has been registered on the International Guide Registration platform (Registration Number: PREPARE-2024CN412).

PMID:40110382 | PMC:PMC11915712 | DOI:10.31083/AP38759

Predicting the effect of ethical climate and spiritual well-being of nurses on respecting the patients' privacy in intensive care units: an analytical study

Fri, 14 Mar 2025 00:00:00 +0000

BMC Res Notes. 2025 Mar 13;18(1):111. doi: 10.1186/s13104-025-07174-7.

ABSTRACT

BACKGROUND: Ethical climate, observance of patients' privacy and nurses' spiritual well-being are of great importance in intensive care units (ICU). In addition, it is essential to identify spiritual and ethical predictors of patients' privacy. Thus, this study aimed to determine the predictive effects of ethical climate and nurses' spiritual well-being on patients' privacy in ICU.

METHODS: In this analytical cross-sectional study, 250 out of 500 ICU nurses were recruited using proportionate allocation stratified sampling. Data were collected using a demographic characteristics form, Patient Privacy Scale, Hospital Ethical Climate Survey, and Spiritual Well-Being Scale. The data were analyzed using Pearson correlation coefficient and hierarchical linear regression analysis.

RESULTS: The results showed that patients' privacy was associated with the hospital's ethical climate and nurses' spiritual well-being (P < 0.001). The hierarchical linear regression analysis indicated that, in step 1, patients (β = 0.22, P = 0.03) and managers' (β = 0.41, P < 0.001) subscales of ethical climate had a significant proportion of the variance of patients' privacy. In step 2, patients (β = 0.25, P = 0.01), managers' (β = 0.34, P < 0.001) subscales of ethical climate, and nurses' spiritual well-being (β = 0.17, P = 0.01) had a significant proportion of the variance of patients' privacy. According to step 2, these variables explained 40% of the changes in patients' privacy.

CONCLUSION: The results of the present study showed that the ethical climate and nurses' spiritual well-being were the predictors of patients' privacy. Given that 40% of the variance of the patients' privacy was recognized by these variables, it is suggested that further research should be conducted to determine other predictors.

PMID:40082993 | PMC:PMC11907835 | DOI:10.1186/s13104-025-07174-7

A scoping review of ethical aspects of public-private partnerships in digital health.

Thu, 27 Feb 2025 05:00:00 +0000

NPJ Digital Medicine; 02/27/2025
(AN 183353275); ISSN: 23986352
CINAHL Complete

A scoping review of ethical aspects of public-private partnerships in digital health

Thu, 27 Feb 2025 00:00:00 +0000

NPJ Digit Med. 2025 Feb 27;8(1):129. doi: 10.1038/s41746-025-01515-3.

ABSTRACT

Partnerships between public and private organizations in digital health can promote more accessible, affordable, and high-quality care, but they also raise ethical and governance challenges. We searched PubMed, EMBASE, and Web of Science, identifying 46 studies examining ethical aspects of digital health public-private partnerships (PPPs). Three key themes emerged: data privacy and consent, ensuring public benefit and access, and good governance and demonstrating trustworthiness. We provide recommendations for each theme. To foster responsible innovation, we conclude that early and contextual operationalisation of ethics guidelines in PPPs is necessary to balance respect for fundamental values with the pursuit of impactful innovation. If PPPs become more successful as a result, this contributes to reducing the research waste of failed collaborations. Further research should clarify the scope of PPPs and definition of 'public benefit', and we call for critical study on the 'economization' of digital health promoted by public and private sector organizations.

PMID:40016286 | PMC:PMC11868512 | DOI:10.1038/s41746-025-01515-3

Exploring the Ethical Implications of ChatGPT in Medical Education: Privacy, Accuracy, and Professional Integrity in a Cross-Sectional Survey

Fri, 17 Jan 2025 00:00:00 +0000

Cureus. 2024 Dec 17;16(12):e75895. doi: 10.7759/cureus.75895. eCollection 2024 Dec.

ABSTRACT

BACKGROUND: The inclusion of artificial intelligence in medical education, specifically through the use of ChatGPT (OpenAI, San Francisco, CA), has transformed learning and generated many ethical questions. This study aims to analyze the medical students' ethical concerns about using ChatGPT in medical education, focusing on privacy, accuracy, and professional integrity.

METHODS: The study format was a cross-sectional survey distributed to 219 medical students at ABWA Medical College, Pakistan. A pre-validated, pre-structured questionnaire was created with Google Forms, including questions regarding the accuracy of ChatGPT, confidentiality, and its impact on the students' critical thinking faculties. This information was collected after obtaining informed consent. The data collected were descriptively and inferentially analyzed using SPSS software version 26.0 (IBM Corp., Armonk, NY).

RESULTS: In total, 95% of respondents (n = 190) confirmed that the information provided by ChatGPT was accurate, and 80% (n = 160) stated that they trusted the medical information from the tool. However, 83% (n = 166 students) indicated concerns about privacy and data security. While 69% of participants (n = 138) discovered that ChatGPT supplemented their critical thinking skills, the rest (31%; n = 62) believed it led to decreased autonomy over time. However, since health science-related courses often involve sensitive patient information, 22% (n = 44) of students raised concerns about using ChatGPT in future medical education due to the potential issues with privacy and the risk of inaccuracies in recorded information.

CONCLUSION: ChatGPT offers promising educational benefits in medical training but raises significant ethical concerns, particularly regarding data privacy and the potential for over-reliance. The results suggest the need for responsible integration of AI in medical education, ensuring it supplements rather than replaces traditional learning methods.

PMID:39822443 | PMC:PMC11737866 | DOI:10.7759/cureus.75895

Workers' moral hazard and private insurer effort in disability insurance.

Sun, 01 Dec 2024 05:00:00 +0000

Journal of Risk & Insurance; 12/01/2024
While it is well known that supplementary private Disability Insurance (DI) has the potential to increase workers' moral hazard, the extra coverage may also increase incentives for private insurers to reduce caseloads by means of prevention and reintegration activities. With unique administrative data on DI contracts of firms in the Netherlands, this paper aims to disentangle these worker and insurer responses to increased coverage. Supplementary insurance increases the insurers' incentive to lower disability risks, but in our setting it also creates an incentive for the insurers to facilitate partial work resumption of disabled workers who have earnings capacity. Using firm‐ and time‐fixed effects models on the absence and employment rates, we find that insurer effort counteracts workers' moral hazard.
(AN 181039578); ISSN: 00224367
Health Business Elite

Rise of Private Equity Raises Ethical Conflicts in Emergency Medicine.

Sun, 01 Dec 2024 05:00:00 +0000

Medical Ethics Advisor; 12/01/2024
(AN 181425440); ISSN: 08860653
CINAHL Complete

Balancing privacy and responsibility: The ethical implications of cryptocurrency in dermatology

Sat, 16 Nov 2024 00:00:00 +0000

J Am Acad Dermatol. 2024 Nov 14:S0190-9622(24)03182-7. doi: 10.1016/j.jaad.2024.10.082. Online ahead of print.

NO ABSTRACT

PMID:39549853 | DOI:10.1016/j.jaad.2024.10.082

Machine Learning in Health Care: Ethical Considerations Tied to Privacy, Interpretability, and Bias

Mon, 28 Oct 2024 00:00:00 +0000

N C Med J. 2024 Jun;85(4):240-245. doi: 10.18043/001c.120562.

ABSTRACT

Machine learning models hold great promise with medical applications, but also give rise to a series of ethical challenges. In this survey we focus on training data, model interpretability and bias and the related issues tied to privacy, autonomy, and health equity.

PMID:39466090 | DOI:10.18043/001c.120562

Ethical considerations regarding patient privacy when employing artificial intelligence in dermatology

Sat, 19 Oct 2024 00:00:00 +0000

Int J Dermatol. 2025 Jun;64(6):1124-1125. doi: 10.1111/ijd.17525. Epub 2024 Oct 19.

NO ABSTRACT

PMID:39425508 | DOI:10.1111/ijd.17525

Speculation fit for a king? Medical announcements from the British royal family and the recurring ethical complexities of personal privacy and public commentary from physicians.

Fri, 04 Oct 2024 04:00:00 +0000

BMC Medical Ethics; 10/04/2024
(AN 180106810); ISSN: 14726939
CINAHL Complete

Speculation fit for a king? Medical announcements from the British royal family and the recurring ethical complexities of personal privacy and public commentary from physicians

Fri, 04 Oct 2024 00:00:00 +0000

BMC Med Ethics. 2024 Oct 4;25(1):105. doi: 10.1186/s12910-024-01105-0.

ABSTRACT

This article explores the ethical complexities of openly-expressed medical commentary using recent cancer diagnoses within the British monarchy as illustrative cases. Specifically, it examines tensions between public interest, personal privacy, and professional standards, underlining the adverse implications of conjectural discourse, alongside the role of physicians in enhancing wider medical understanding.

PMID:39367413 | PMC:PMC11451130 | DOI:10.1186/s12910-024-01105-0

Academic Ethical Awareness among Undergraduate Nursing Students of a Private University in Nigeria: A Cross-Sectional Descriptive Study

Tue, 24 Sep 2024 00:00:00 +0000

SAGE Open Nurs. 2024 Sep 19;10:23779608241281295. doi: 10.1177/23779608241281295. eCollection 2024 Jan-Dec.

ABSTRACT

INTRODUCTION: Academic ethical awareness is a crucial prerequisite for practice, serving as the cornerstone for a professional demeanor in clinical settings and ensuring future adherence to nursing ethics.

OBJECTIVES: This study assessed academic ethical awareness as well as its related characteristics among undergraduate Nursing students of a private university in Nigeria.

METHODS: A descriptive cross-sectional research design was utilized. The study was conducted among undergraduate nursing students of a private university in Nigeria. A convenience sample of 158 nursing students from 300 level to 500 level voluntarily participated in this study. Data were collected using the Academic Ethical Awareness Questionnaire and descriptive statistics, mean and standard deviation were employed to analysis the data collected.

RESULTS: The mean age of nursing students was 21.1. Majority of the respondents were females, Christians and claimed average financial status with 87%, 94%, and 68%, respectively. Nursing students demonstrated moderate academic ethical awareness (69.5%), a mean score of 3.68 ± 0.81. They knew that revealing patient information in public places of the hospital, disregarding, slandering, or making fun of patients in face-to-face interaction, and having someone else attend class as a substitute were unethical behaviors with mean scores of 3.96, 3.90, 3.88, and 3.88, respectively. Academic ethical awareness was low for submitting cut and paste report, not paying attention in class and being late to class, with mean scores 1.81, 2.05, and 2.80, respectively. Gender, level of study, and satisfaction with Nursing as a course of choice are significant determinant of ethical academic awareness with P value of .018, .005, and .011, respectively.

CONCLUSION: Nursing students assessed demonstrated moderate academic ethical awareness. Improved instruction is required regarding the value of appropriate classroom behavior and emphasis on the implications of plagiarism in practice.

PMID:39314649 | PMC:PMC11418356 | DOI:10.1177/23779608241281295

Nurses' perspectives on privacy and ethical concerns regarding artificial intelligence adoption in healthcare

Mon, 16 Sep 2024 00:00:00 +0000

Heliyon. 2024 Aug 22;10(17):e36702. doi: 10.1016/j.heliyon.2024.e36702. eCollection 2024 Sep 15.

ABSTRACT

BACKGROUND: With the increasing integration of artificial intelligence (AI) technologies into healthcare systems, there is a growing emphasis on privacy and ethical considerations. Nurses, as frontline healthcare professionals, are pivotal in-patient care and offer valuable insights into the ethical implications of AI adoption.

OBJECTIVES: This study aimed to explore nurses' perspectives on privacy and ethical concerns associated with the implementation of AI in healthcare settings.

METHODS: We employed Van Manen's hermeneutic phenomenology as the qualitative research approach. Data were collected through purposive sampling from the December 7, 2023 to the January 15, 2024, with interviews conducted in Bengali. Thematic analysis was utilized following member checking and an audit trail.

RESULTS: Six themes emerged from the research findings: Ethical dimensions of AI integration, highlighting complexities in incorporating AI ethically; Privacy challenges in healthcare AI, revealing concerns about data security and confidentiality; Balancing innovation and ethical practice, indicating a need to reconcile technological advancements with ethical considerations; Human touch vs. technological progress, underscoring tensions between automation and personalized care; Patient-centered care in the AI era, emphasizing the importance of maintaining focus on patients amidst technological advancements; and Ethical preparedness and education, suggesting a need for enhanced training and education on ethical AI use in healthcare.

CONCLUSIONS: The findings underscore the importance of addressing privacy and ethical concerns in AI healthcare development. Nurses advocate for patient-centered approaches and collaborate with policymakers and tech developers to ensure responsible AI adoption. Further research is imperative for mitigating ethical challenges and promoting ethical AI in healthcare practice.

PMID:39281626 | PMC:PMC11400963 | DOI:10.1016/j.heliyon.2024.e36702

Private Equity Acquisition of Physician Practices—Looking for Ethical Guidance From Professional Societies.

Fri, 13 Sep 2024 04:00:00 +0000

JAMA Health Forum; 09/13/2024
(AN 179640644)
CINAHL Complete

Private Equity Acquisition of Physician Practices-Looking for Ethical Guidance From Professional Societies

Fri, 13 Sep 2024 00:00:00 +0000

JAMA Health Forum. 2024 Sep 6;5(9):e242767. doi: 10.1001/jamahealthforum.2024.2767.

NO ABSTRACT

PMID:39269693 | DOI:10.1001/jamahealthforum.2024.2767

Assessment of the understanding and awareness of bioethics among healthcare professionals in all public and private hospitals of Haripur district, Pakistan: a multicentre cross-sectional study

Mon, 19 Aug 2024 00:00:00 +0000

BMJ Open. 2024 Aug 19;14(8):e083521. doi: 10.1136/bmjopen-2023-083521.

ABSTRACT

OBJECTIVE: To assess the level of bioethics awareness among healthcare professionals in Pakistan, focusing on the associations with sociodemographic characteristics, training and teaching of ethics, medical ethics practice and specific ethical issues.

DESIGN: Cross-sectional study.

SETTING: Public and private hospitals in Haripur, Pakistan.

PARTICIPANTS: A total of 647 healthcare professionals participated in this study.

METHODS: This study was conducted between March and May 2023, following Strengthening the Reporting of Observational Studies in Epidemiology checklist criterion, involving healthcare professionals with at least 6 months of experience in patient care practice. Providers under close supervision are advised not to respond to the bioethics knowledge, attitudes and practices survey form due to potential ethical dilemmas.

RESULTS: Both physicians and non-physicians need to know more about bioethics. There was a significant difference (p<0.05) in ethical training and teaching based on job categories/designations, with ethical views differing greatly by job designation. Specific ethical issues, such as accepting gifts from patients and pharmaceutical companies, referral fees, advising specific products, disclosure of medical errors, patient confidentiality, not informing patients fully about treatment and performing tasks for financial gain, showed significant associations (p<0.05) with healthcare professional's designation. Ethical awareness scores also showed significant differences (p<0.05) based on age, ethnicity, place of posting, professional experience and the organisation's ethical guidelines.

CONCLUSION: This study highlighted a notable gap in the understanding of certain ethical concerns among healthcare professionals, with nurses showing relatively lower awareness of healthcare practice compared with other professionals. Addressing these issues through targeted training and robust ethical guidelines is critical to improving patient care in Pakistan's healthcare system.

PMID:39160104 | PMC:PMC11337700 | DOI:10.1136/bmjopen-2023-083521

Public Good versus Private "Goods": Ethical Implications of Drug Shortages on Anesthesiology Practice

Thu, 25 Jul 2024 00:00:00 +0000

Anesthesiol Clin. 2024 Sep;42(3):445-455. doi: 10.1016/j.anclin.2023.12.001. Epub 2023 Dec 16.

ABSTRACT

Drug shortages remain a serious and widespread problem affecting all health systems and patients. Anesthesiology practice is strongly impacted by shortages of sterile injectable drugs, resulting in a negative impact on the quality of care. Understanding the root causes of drug shortages guides the anesthesiologist toward an ethical response. While rationing is a common consideration in secular ethics, and indeed rationing strategies are utilized, the use of rationing alone risks normalizing and perpetuating the drug shortage problem. Drug shortages are the direct result of a market failure brought on by lack of oversight of drug production standards in some cases as well as by the impact of intermediary purchasing groups on costs and availability of drugs. Legislation needs to reestablish a responsible, competitive, and robust manufacturing drug market.

PMID:39054019 | DOI:10.1016/j.anclin.2023.12.001

What Do We Mean by Sharing of Patient Data? DaSH: A Data Sharing Hierarchy of Privacy and Ethical Challenges

Thu, 25 Jul 2024 00:00:00 +0000

Appl Clin Inform. 2024 Oct;15(5):833-841. doi: 10.1055/a-2373-3291. Epub 2024 Jul 25.

ABSTRACT

BACKGROUND: Clinical data sharing is common and necessary for patient care, research, public health, and innovation. However, the term "data sharing" is often ambiguous in its many facets and complexities-each of which involves ethical, legal, and social issues. To our knowledge, there is no extant hierarchy of data sharing that assesses these issues.

OBJECTIVE: This study aimed to develop a hierarchy explicating the risks and ethical complexities of data sharing with a particular focus on patient data privacy.

METHODS: We surveyed the available peer-reviewed and gray literature and with our combined extensive experience in bioethics and medical informatics, created this hierarchy.

RESULTS: We present six ways on how data are shared and provide a tiered Data Sharing Hierarchy (DaSH) of risks, showing increasing threats to patients' privacy, clinicians, and organizations as one progresses up the hierarchy from data sharing for direct patient care, public health and safety, scientific research, commercial purposes, complex combinations of the preceding efforts, and among networked third parties. We offer recommendations to enhance the benefits of data sharing while mitigating risks and protecting patients' interests by improving consenting; developing better policies and procedures; clarifying, simplifying, and updating regulations to include all health-related data regardless of source; expanding the scope of bioethics for information technology; and increasing ongoing monitoring and research.

CONCLUSION: Data sharing, while essential for patient care, is increasingly complex, opaque, and perhaps perilous for patients, clinicians, and health care institutions. Risks increase with advances in technology and with more encompassing patient data from wearables and artificial intelligence database mining. Data sharing places responsibilities on all parties: patients, clinicians, researchers, educators, risk managers, attorneys, informaticists, bioethicists, institutions, and policymakers.

PMID:39053616 | PMC:PMC11483170 | DOI:10.1055/a-2373-3291

Examination of ethical intelligence and cognitive flexibility of nurses and their role in predicting the level of patient privacy protection.

Tue, 23 Jul 2024 04:00:00 +0000

BMC Nursing; 07/23/2024
Introduction: Possessing ethical intelligence and cognitive flexibility can play a significant role in the acceptable performance of nurses. Furthermore, respecting the privacy of patients should always be a primary ethical principle that nurses focus on. This study aimed to investigate the ethical intelligence and cognitive flexibility of nurses and their role in predicting the level of patients' privacy observance. Also, determining the overall status of patient privacy protection and its two domains, namely human dignity domain and maintaining personal privacy, were specific objectives of this study. Methods: This cross-sectional descriptive-analytical study was conducted in 2022. A sample of 340 nurses and 1067 patients from teaching hospitals affiliated with Shiraz University of Medical Sciences in southern Iran were selected. Standard questionnaires of ethical intelligence and cognitive flexibility were used for nurses, and a privacy observance questionnaire was used for patients. Data were analyzed using t-tests, ANOVA, Pearson correlation coefficient, and multiple linear regression with the SPSS23 software. Results: The mean score of ethical intelligence and cognitive flexibility for nurses was 98.33 ± 18.06 (out of 200) and 74.56 ± 16.76 (out of 140), respectively. The mean score of patients' privacy observance was 79.74 ± 14.53 (out of 150). The results of multiple linear regression showed that the dimensions of perseverance and assertiveness towards rights (β = 0.540, p < 0.001), action based on principles, values, and beliefs (β = 0.454, p < 0.001), responsibility towards personal decisions (β = 0.410, p < 0.001), accepting responsibility for serving others (β = 0.393, p < 0.001), ability to forgive one's mistakes (β = 0.301, p = 0.001), ability to forgive others' mistakes (β = 0.287, p = 0.002), honesty (β = 0.275, p = 0.004), acknowledgment of mistakes and failures (β = 0.263, p = 0.005), commitment to promises (β = 0.242, p = 0.005), and interest in others (β = 0.237, p = 0.01) from the dimensions of ethical intelligence, as well as the dimensions of perceived control (β = 0.580, p < 0.001), perception of multiple solutions (β = 0.511, p < 0.001), and perception of justifications (β = 0.373, p < 0.001) from the dimensions of cognitive flexibility had a positive and significant effect on the level of patients' privacy observance. Conclusion: Ethical intelligence and cognitive flexibility of nurses and the level of patient privacy protection were estimated to be at a moderate level. Also, the level of ethical intelligence and cognitive flexibility of nurses played a predictive role in the level of patients' privacy observance. It is suggested that hospital managers and policymakers enhance nurses' ethical intelligence and cognitive flexibility through educational, welfare, managerial, motivational, and job-related programs, thereby improving the status of patient privacy protection.
(AN 178559911); ISSN: 14726955
CINAHL Complete

Examination of ethical intelligence and cognitive flexibility of nurses and their role in predicting the level of patient privacy protection

Mon, 22 Jul 2024 00:00:00 +0000

BMC Nurs. 2024 Jul 23;23(1):501. doi: 10.1186/s12912-024-02153-y.

ABSTRACT

INTRODUCTION: Possessing ethical intelligence and cognitive flexibility can play a significant role in the acceptable performance of nurses. Furthermore, respecting the privacy of patients should always be a primary ethical principle that nurses focus on. This study aimed to investigate the ethical intelligence and cognitive flexibility of nurses and their role in predicting the level of patients' privacy observance. Also, determining the overall status of patient privacy protection and its two domains, namely human dignity domain and maintaining personal privacy, were specific objectives of this study.

METHODS: This cross-sectional descriptive-analytical study was conducted in 2022. A sample of 340 nurses and 1067 patients from teaching hospitals affiliated with Shiraz University of Medical Sciences in southern Iran were selected. Standard questionnaires of ethical intelligence and cognitive flexibility were used for nurses, and a privacy observance questionnaire was used for patients. Data were analyzed using t-tests, ANOVA, Pearson correlation coefficient, and multiple linear regression with the SPSS23 software.

RESULTS: The mean score of ethical intelligence and cognitive flexibility for nurses was 98.33 ± 18.06 (out of 200) and 74.56 ± 16.76 (out of 140), respectively. The mean score of patients' privacy observance was 79.74 ± 14.53 (out of 150). The results of multiple linear regression showed that the dimensions of perseverance and assertiveness towards rights (β = 0.540, p < 0.001), action based on principles, values, and beliefs (β = 0.454, p < 0.001), responsibility towards personal decisions (β = 0.410, p < 0.001), accepting responsibility for serving others (β = 0.393, p < 0.001), ability to forgive one's mistakes (β = 0.301, p = 0.001), ability to forgive others' mistakes (β = 0.287, p = 0.002), honesty (β = 0.275, p = 0.004), acknowledgment of mistakes and failures (β = 0.263, p = 0.005), commitment to promises (β = 0.242, p = 0.005), and interest in others (β = 0.237, p = 0.01) from the dimensions of ethical intelligence, as well as the dimensions of perceived control (β = 0.580, p < 0.001), perception of multiple solutions (β = 0.511, p < 0.001), and perception of justifications (β = 0.373, p < 0.001) from the dimensions of cognitive flexibility had a positive and significant effect on the level of patients' privacy observance.

CONCLUSION: Ethical intelligence and cognitive flexibility of nurses and the level of patient privacy protection were estimated to be at a moderate level. Also, the level of ethical intelligence and cognitive flexibility of nurses played a predictive role in the level of patients' privacy observance. It is suggested that hospital managers and policymakers enhance nurses' ethical intelligence and cognitive flexibility through educational, welfare, managerial, motivational, and job-related programs, thereby improving the status of patient privacy protection.

PMID:39039579 | PMC:PMC11264443 | DOI:10.1186/s12912-024-02153-y

Beyond surveillance: privacy, ethics, and regulations in face recognition technology

Fri, 19 Jul 2024 00:00:00 +0000

Front Big Data. 2024 Jul 3;7:1337465. doi: 10.3389/fdata.2024.1337465. eCollection 2024.

ABSTRACT

Facial recognition technology (FRT) has emerged as a powerful tool for public governance and security, but its rapid adoption has also raised significant concerns about privacy, civil liberties, and ethical implications. This paper critically examines the current rules and policies governing FRT, highlighting the tensions between state and corporate interests on one hand, and individual rights and ethical considerations on the other. The study also investigates international legal frameworks aimed at protecting individual rights and privacy, arguing that current legislative measures often fall short of robust scholarly standards and international human rights norms. The paper concludes with recommendations for developing principled and adaptable governance frameworks that harness the benefits of FRT while mitigating its risks and negative impacts, underscoring the importance of placing human rights and ethics at the center of regulating this transformative technology.

PMID:39027377 | PMC:PMC11256005 | DOI:10.3389/fdata.2024.1337465

The Ethical Dilemma of Balancing Confidentiality and Duty to Protect: A Case Report of Comorbid Schizophrenia and Cannabis Use Disorder with Homicidal Thoughts

Mon, 08 Jul 2024 00:00:00 +0000

Niger Med J. 2023 Jul 2;64(3):424-426. eCollection 2023 May-Jun.

ABSTRACT

This is a report of a 29-year-old female with a history of Schizophrenia and Cannabis Use Disorder who presented with auditory hallucinations that asked her to kill her immediate supervisor. She presented the ethical dilemma many healthcare providers face in balancing the principles of patient confidentiality with the duty to protect and beneficence. The clinicians breached the patient's right to confidentiality to protect her supervisor by informing the supervisor, their manager, and the police. However, they also ensured her job security, which she risked in an environment where mental illness is highly stigmatized. This case highlights the importance of considering the ethical principles of disclosing confidential information, such as the Tarasoff I and II, and beneficence (as her job was protected) in making clinical decisions. It also summarizes the legal precedents established by the Tarasoff cases and the implications for clinical practice.

PMID:38974070 | PMC:PMC11223015

E-Health: Security, Privacy, and Ethics Requirements from a National Perspective in I. R. Iran

Fri, 24 May 2024 00:00:00 +0000

Stud Health Technol Inform. 2024 May 23;314:147-148. doi: 10.3233/SHTI240079.

ABSTRACT

This paper explores the security, privacy, and ethical implications of e-health data in Iran's healthcare network. A framework is proposed to ensure security and privacy in electronic health information processing across various institutions. The framework addresses aspects such as software/hardware, communication networks, patient safety, privacy, confidentiality, online health service regulations, commercial and judicial exploitation, and education/research. The study categorizes these requirements into seven main categories to safeguard health-oriented service recipients' security and privacy.

PMID:38785021 | DOI:10.3233/SHTI240079

Balancing public health and group privacy: Ethics, rights, and obligations for wastewater surveillance systems

Thu, 23 May 2024 00:00:00 +0000

Water Res. 2024 Jul 1;258:121756. doi: 10.1016/j.watres.2024.121756. Epub 2024 May 9.

ABSTRACT

As the threat of COVID-19 recedes, wastewater surveillance - unlike other pandemic-era public health surveillance methods - seems here to stay. Concerns have been raised, however, about the potential risks that wastewater surveillance might pose towards group privacy. Existing scholarship has focused upon using ethics- or human rights-based frameworks as a means of balancing the public health objectives of wastewater surveillance and the potential risks it might pose to group privacy. However, such frameworks greatly lack enforceability. In order to further the strong foundation laid by such frameworks - while addressing their lack of enforceability - this paper proposes the idea of the 'obligation' as an alternative way to regulate wastewater surveillance systems. The legal codification of said obligations provides a method of ensuring that wastewater surveillance systems can be deployed effectively and equitably. Our paper proposes that legal obligations for wastewater surveillance can be created and enforced through transparent and purposeful legislation (which would include limits on power and grant institutions substantial oversight) as well as paying heed to non-legislative legal means of enforcement, such as through courts or contracts. Introducing legal obligations for wastewater surveillance could therefore be highly useful to researchers, policymakers, corporate technologists, and government agencies working in this field.

PMID:38781624 | DOI:10.1016/j.watres.2024.121756

Ethics support for ethics support: the development of the Confidentiality Compass for dealing with moral challenges concerning (breaching) confidentiality in moral case deliberation.

Fri, 03 May 2024 04:00:00 +0000

BMC Medical Ethics; 05/03/2024
(AN 177045885); ISSN: 14726939
CINAHL Complete

Ethics support for ethics support: the development of the Confidentiality Compass for dealing with moral challenges concerning (breaching) confidentiality in moral case deliberation

Fri, 03 May 2024 00:00:00 +0000

BMC Med Ethics. 2024 May 3;25(1):49. doi: 10.1186/s12910-024-01039-7.

ABSTRACT

BACKGROUND: Confidentiality is one of the central preconditions for clinical ethics support (CES). CES cases which generate moral questions for CES staff concerning (breaching) confidentiality of what has been discussed during CES can cause moral challenges. Currently, there seems to be no clear policy or guidance regarding how CES staff can or should deal with these moral challenges related to (not) breaching confidentiality within CES. Moral case deliberation is a specific kind of CES.

METHOD: Based on experiences and research into MCD facilitators' needs for ethics support in this regard, we jointly developed an ethics support tool for MCD facilitators: the Confidentiality Compass. This paper describes the iterative developmental process, including our theoretical viewpoints and reflections on characteristics of CES tools in general.

RESULTS: The content and goals of the ethics support tool, which contains four elements, is described. Part A is about providing information on the concept of confidentiality in MCD, part B is a moral compass with reflective questions, part C focuses on courses of action for careful handling of moral challenges related to confidentiality. Part D contains general lessons, best practices and tips for dealing with confidentiality in future cases.

CONCLUSIONS: This paper concludes with providing some lessons-learned related to developing ethics support tools and some reflections on issues of quality and normativity of ethics support tools.

PMID:38702729 | PMC:PMC11067180 | DOI:10.1186/s12910-024-01039-7

Children's Sexual Development and Privacy: A Call for Evidence-Based Ethical Policy.

Wed, 01 May 2024 04:00:00 +0000

Clinical Pediatrics; 05/01/2024
(AN 176610706); ISSN: 00099228
CINAHL Complete

Observed Privileged Communication and Ethics in Communication among Allied Health Students.

Wed, 01 May 2024 04:00:00 +0000

International Journal of Caring Sciences; 05/01/2024
Background: Medical confidentiality is an essential condition in the trust-based relationship between healthcare practitioners. It is, in fact, specified in several constitutions as well as the medical professional code of conduct. A breach of secretiveness or confidentiality may result in illicit repercussions and professional consequences, as well as civil lawsuits for damages and compensation by the person harmed. Objective : The goal of this study is to determine what is the correlation of observed privileged communication and ethics on communication among allied health students in University of Makati. The study can provide information to educators, learners and researchers on the correlations of the profile demographic of the allied health students, privileged communication and ethics in communication. Methodology: This research used a quantitative approach in order to examine and analyze measurable data using statistical approaches. Furthermore, this study utilized descriptive correlational research. The total population sampling technique is used to determine and specify the population of respondents. The research tool consisted of 20 item questions for privileged communication and another 20 items for ethical principles. The study also utilized a 4-point likert-scale questionnaire by the use of an online data gathering application for data collecting while descriptive statistics and weighted mean, The researchers utilized frequency, percentage, mean, standard deviation, chi-square, and Pearson R correlations. Findings: The findings of the study revealed the majority of the respondents are in the age group of 22 years old, most of them are females, nursing students are the majority respondents, and Roman Catholic is the majority when it comes to religion. It was also revealed that the correlation between privileged communication and ethical principle has a strong positive relationship between privileged communication and ethical principles, as indicated by a correlation coefficient of 0.954 and a significant p-value of 0.1024. Furthermore, a correlation coefficient of 0.954 and a p-value of 0.1024 shows that the privilege communication and ethical principle have a high positive relationship thus, null hypothesis is rejected. Conclusions : The study suggests that allied health students understand the importance of privileged communication and ethical principles in healthcare. The strong positive relationship between these variables indicates the recognition among students of the critical role these principles play in promoting ethical decision-making and protecting patients' rights to privacy and confidentiality.
(AN 179591101); ISSN: 17915201
CINAHL Complete

Ethical and social implications of public-private partnerships in the context of genomic/big health data collection

Tue, 16 Apr 2024 00:00:00 +0000

Eur J Hum Genet. 2024 Jun;32(6):736-741. doi: 10.1038/s41431-024-01608-9. Epub 2024 Apr 16.

ABSTRACT

This paper reports on the findings of an international workshop organised by the UK-France+ Genomics and Ethics Network (UK-FR + GENE) in 2022. The focus of the workshop were the ethical and social issues raised by public-private partnerships in the context of large-scale genomics initiatives in France, Germany, the United Kingdom and Israel, i.e. collaborations where commercial entities are given access to publicly held genomic data. While the public sector relies on partnerships with commercial entities to exploit the full potential of the data it holds, such collaborations may have an impact on the return of benefits to the public sector and on public trust, and subsequently challenge the social contract. The first part of this paper explores the ways in which the four countries examined respond to the challenges posed to the social contract, and what safeguards they put in place to secure public trust. The second part presents three approaches to address the challenges of private-public partnerships in secondary data use. In conclusion, this paper offers a set of minimum requirements for these partnerships within solidarity-based publicly funded healthcare systems. These include the necessity of public-private partnerships to (1) contribute to the public benefit and minimise harm produced by the use of publicly held data; (2) avoid prioritisation of commercial interests over robust governance structures to guarantee benefits to the public and protect donors, especially marginalised groups; (3) side-step the pitfalls of the rhetoric of solidarity and be transparent about the challenges to return the benefits to ‘all’.

PMID:38627540 | PMC:PMC11153602 | DOI:10.1038/s41431-024-01608-9

Beyond Public Health and Private Choice: Breastfeeding, Embodiment and Public Health Ethics

Mon, 08 Apr 2024 00:00:00 +0000

Asian Bioeth Rev. 2023 Oct 26;16(2):249-266. doi: 10.1007/s41649-023-00259-0. eCollection 2024 Apr.

ABSTRACT

The key objective of this paper is to emphasize the importance of acknowledging breastfeeding as an embodied social practice within interventions related to breastfeeding and lactation and illustrate how this recognition holds implications for public health ethics debates. Recent scholarship has shown that breastfeeding and lactation support interventions undermine women's autonomy. However, substantial discourse is required to determine how to align with public health goals while also recognizing the embodied experiences of breastfeeding and lactating individuals. Presently, interventions in this realm predominantly revolve around health-related messaging and the promotion of individual behaviors, often neglecting the systemic and structural factors that influence choices and practices. I closely examine breastfeeding interventions in India, in particular Mothers' Absolute Affection health promotion program, along with breastfeeding narratives. I argue that for such interventions to evolve, they must acknowledge the intrinsic embodied social nature of breastfeeding during their design and implementation. Furthermore, it is important to emphasize that achieving equity and justice objectives necessitates moving beyond the confines of both conventional public health frameworks and frameworks solely centered on private choices. Instead, a more encompassing approach that embraces the concept of embodiment should be adopted.

PMID:38586574 | PMC:PMC10994897 | DOI:10.1007/s41649-023-00259-0

Talking Ethics Early in Health Data Public Private Partnerships.

Fri, 15 Mar 2024 04:00:00 +0000

Journal of Business Ethics; 03/15/2024
Data access and data sharing are vital to advance medicine. A growing number of public private partnerships are set up to facilitate data access and sharing, as private and public actors possess highly complementary health data sets and treatment development resources. However, the priorities and incentives of public and private organizations are frequently in conflict. This has complicated partnerships and sparked public concerns around ethical issues such as trust, justice or privacy—in turn raising an important problem in business and data ethics: how can ethical theory inform the practice of public and private partners to mitigate misaligned incentives, and ensure that they can deliver societally beneficial innovation? In this paper, we report on the development of the Swiss Personalized Health Network's ethical guidelines for health data sharing in public private partnerships. We describe the process of identifying ethical issues and engaging core stakeholders to incorporate their practical reality on these issues. Our report highlights core ethical issues in health data public private partnerships and provides strategies for how to overcome these in the Swiss health data context. By agreeing on and formalizing ethical principles and practices at the beginning of a partnership, partners and society can benefit from a relationship built around a mutual commitment to ethical principles. We present this summary in the hope that it will contribute to the global data sharing dialogue.
(AN 176006260); ISSN: 01674544
Health Business Elite

Talking Ethics Early in Health Data Public Private Partnerships

Fri, 15 Mar 2024 00:00:00 +0000

J Bus Ethics. 2024;190(3):649-659. doi: 10.1007/s10551-023-05425-w. Epub 2023 May 18.

ABSTRACT

Data access and data sharing are vital to advance medicine. A growing number of public private partnerships are set up to facilitate data access and sharing, as private and public actors possess highly complementary health data sets and treatment development resources. However, the priorities and incentives of public and private organizations are frequently in conflict. This has complicated partnerships and sparked public concerns around ethical issues such as trust, justice or privacy-in turn raising an important problem in business and data ethics: how can ethical theory inform the practice of public and private partners to mitigate misaligned incentives, and ensure that they can deliver societally beneficial innovation? In this paper, we report on the development of the Swiss Personalized Health Network's ethical guidelines for health data sharing in public private partnerships. We describe the process of identifying ethical issues and engaging core stakeholders to incorporate their practical reality on these issues. Our report highlights core ethical issues in health data public private partnerships and provides strategies for how to overcome these in the Swiss health data context. By agreeing on and formalizing ethical principles and practices at the beginning of a partnership, partners and society can benefit from a relationship built around a mutual commitment to ethical principles. We present this summary in the hope that it will contribute to the global data sharing dialogue.

PMID:38487176 | PMC:PMC10933190 | DOI:10.1007/s10551-023-05425-w

E-Health: Security, Privacy, and Ethics Requirements from a National Perspective in I. R. Iran...Proceedings of the 20th International Conference on Wearable Micro and Nano Technologies for Personalized Health - pHealth 2024, May 27-29, 2024, Rende, Italy

Fri, 01 Mar 2024 05:00:00 +0000

Studies in Health Technology & Informatics; 03/01/2024
This paper explores the security, privacy, and ethical implications of ehealth data in Iran's healthcare network. A framework is proposed to ensure security and privacy in electronic health information processing across various institutions. The framework addresses aspects such as software/hardware, communication networks, patient safety, privacy, confidentiality, online health service regulations, commercial and judicial exploitation, and education/research. The study categorizes these requirements into seven main categories to safeguard health-oriented service recipients' security and privacy.
(AN 177548714); ISSN: 09269630
CINAHL Complete

Teaching medical ethics and medical professionalism in Saudi public and private medical schools

Thu, 29 Feb 2024 00:00:00 +0000

PLoS One. 2024 Feb 29;19(2):e0298605. doi: 10.1371/journal.pone.0298605. eCollection 2024.

ABSTRACT

Medical ethics and professionalism are two essential parts of building up the identity of a competent physician. This study was conducted to determine the nature, content, and methods of medical ethics and professionalism education in Saudi public and private medical schools. It also sought to identify the challenges and obstacles in teaching and assessing medical ethics and professionalism and suggest appropriate changes. A cross-sectional study was carried out in Saudi private and public medical schools. To achieve the study's aim, an assessment tool in the form of a novel self-administered questionnaire was developed, piloted, and then used. A representative from each of the 28 Saudi medical schools participated in the study. Twenty-four (82.1%) responding medical schools have no medical ethics department. Most of the medical schools (64.2%) have 25% or less of their faculty staff who teach ethics holding a qualification in medical ethics. Most schools have a specific course for medical ethics and professionalism (85.7% and 57.1%, respectively). Multiple-choice questioning is the most popular assessment method in medical ethics and professionalism courses (89.3% and 60.7%, respectively). The need for more qualified staff and clear guidelines/resources is a significant drawback to the teaching of medical ethics. Therefore, the study recommends developing national guidelines dedicated to the undergraduate teaching curriculum from which courses would be designed to enhance medical ethics and medical professionalism.

PMID:38421988 | PMC:PMC10903870 | DOI:10.1371/journal.pone.0298605

Patient Privacy Is Ethical Concern with DTC Tests.

Fri, 01 Dec 2023 05:00:00 +0000

Medical Ethics Advisor; 12/01/2023
The article focuses on the privacy concerns associated with direct-to-consumer (DTC) lab tests, revealing that a study found most U.S. companies offering such tests are not compliant with patient privacy regulations, raising issues about data protection, and sample handling.
(AN 173886919); ISSN: 08860653
CINAHL Complete

Translating Commercial Health Data Privacy Ethics into Change

Mon, 06 Nov 2023 00:00:00 +0000

Am J Bioeth. 2023 Nov;23(11):7-10. doi: 10.1080/15265161.2023.2263286. Epub 2023 Oct 25.

NO ABSTRACT

PMID:37930943 | PMC:PMC11027484 | DOI:10.1080/15265161.2023.2263286

Translating Commercial Health Data Privacy Ethics into Change.

Wed, 01 Nov 2023 04:00:00 +0000

American Journal of Bioethics; 11/01/2023
(AN 173227811); ISSN: 15265161
CINAHL Complete

Digital Privacy and Data Protection: From Ethical Principles to Action.

Wed, 01 Nov 2023 04:00:00 +0000

American Journal of Bioethics; 11/01/2023
(AN 173227806); ISSN: 15265161
CINAHL Complete