ethique_genetics http://feed.informer.com/digests/07FOHAXEIC/feeder ethique_genetics Respective post owners and feed distributors Thu, 13 Dec 2018 16:49:59 +0000 Feed Informer http://feed.informer.com/ Ethical, social, and cultural issues related to clinical genetic testing and counseling in low- and middle-income countries: a systematic review http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&MODE=ovid&PAGE=fulltext&NEWS=n&D=emexb&AUTOALERT=293779724%7c1 ethique genetique urn:uuid:63216aaf-8267-6a96-6b8c-9d6748f695de Sat, 21 May 2022 08:19:01 +0000 <div class="field" > <strong>Author Names:</strong> <span>Zhong A.,Darren B.,Loiseau B.,He L.Q.B.,Chang T.,Hill J.,Dimaras H.</span> </div> <div class="field" > <strong>Database Source:</strong> <span>Embase Weekly Updates</span> </div> <div class="field" > <strong>Journal Title:</strong> <span>Genetics in Medicine,Genetics in Medicine</span> </div> <div class="field" > <strong>Article Title:</strong> <span><a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&amp;CSC=Y&amp;MODE=ovid&amp;PAGE=fulltext&amp;NEWS=n&amp;D=emexb&amp;AUTOALERT=293779724%7c1">Ethical, social, and cultural issues related to clinical genetic testing and counseling in low- and middle-income countries: a systematic review</a></span> </div> <div class="field" > <strong>Year:</strong> <span>2021</span> </div> <div class="field" > <strong>Issue:</strong> <span>12</span> </div> <div class="field" > <strong>Volume:</strong> <span>23</span> </div> <div class="field" > <strong>Abstract:</strong> <span>Purpose: We performed a systematic review of the ethical, social, and cultural issues associated with delivery of genetic services in low- and middle-income countries (LMICs). &lt;br/&gt;Method(s): We searched 11 databases for studies addressing ethical, social, and/or cultural issues associated with clinical genetic testing and/or counselling performed in LMICs. Narrative synthesis was employed to analyze findings, and resultant themes were mapped onto the social ecological model (PROSPERO #CRD42016042894). &lt;br/&gt;Result(s): After reviewing 13,308 articles, 192 met inclusion criteria. Nine themes emerged: (1) genetic counseling has a tendency of being directive, (2) genetic services have psychosocial consequences that require improved support, (3) medical genetics training is inadequate, (4) genetic services are difficult to access, (5) social determinants affect uptake and understanding of genetic services, (6) social stigma is often associated with genetic disease, (7) family values are at risk of disruption by genetic services, (8) religious principles pose barriers to acceptability and utilization of genetic services, and (9) cultural beliefs and practices influence uptake of information and understanding of genetic disease. &lt;br/&gt;Conclusion(s): We identified a number of complex and interrelated ethical, cultural, and social issues with implications implications for further development of genetic services in LMICs.&lt;br/&gt;Copyright &amp;#xa9; 2018, American College of Medical Genetics and Genomics.</span> </div> Return of results in genomic biobank research: ethics matters http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&MODE=ovid&PAGE=fulltext&NEWS=n&D=emexb&AUTOALERT=293779724%7c2 ethique genetique urn:uuid:97ecb54f-d223-6627-2c8b-334366735935 Sat, 21 May 2022 08:19:01 +0000 <div class="field" > <strong>Author Names:</strong> <span>Wolf S.M.</span> </div> <div class="field" > <strong>Database Source:</strong> <span>Embase Weekly Updates</span> </div> <div class="field" > <strong>Journal Title:</strong> <span>Genetics in Medicine,Genetics in Medicine</span> </div> <div class="field" > <strong>Article Title:</strong> <span><a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&amp;CSC=Y&amp;MODE=ovid&amp;PAGE=fulltext&amp;NEWS=n&amp;D=emexb&amp;AUTOALERT=293779724%7c2">Return of results in genomic biobank research: ethics matters</a></span> </div> <div class="field" > <strong>Year:</strong> <span>2013</span> </div> <div class="field" > <strong>Issue:</strong> <span>2</span> </div> <div class="field" > <strong>Volume:</strong> <span>15</span> </div> <div class="field" > <strong>Abstract:</strong> <span></span> </div> Ethically robust reproductive genetic carrier screening needs to measure outcomes that matter to patients https://pubmed.ncbi.nlm.nih.gov/35581418/?utm_source=Firefox&utm_medium=rss&utm_campaign=None&utm_content=1P7PR1QO6ISexT5eZNQgNDQ80oYg-rBit4RG-og5RQBEMglgkv&fc=None&ff=20220518055103&v=2.17.6 pubmed: (((Genetic*[ti] OR G... urn:uuid:069fc142-1fef-5050-79a1-ed98f5a8bddf Tue, 17 May 2022 00:00:00 +0000 No abstract <div><p style="color: #4aa564;">Eur J Hum Genet. 2022 May 18. doi: 10.1038/s41431-022-01109-7. Online ahead of print.</p><p><b>NO ABSTRACT</b></p><p style="color: lightgray">PMID:<a href="https://pubmed.ncbi.nlm.nih.gov/35581418/?utm_source=Firefox&utm_medium=rss&utm_content=1P7PR1QO6ISexT5eZNQgNDQ80oYg-rBit4RG-og5RQBEMglgkv&ff=20220518055103&v=2.17.6">35581418</a> | DOI:<a href=https://doi.org/10.1038/s41431-022-01109-7>10.1038/s41431-022-01109-7</a></p></div> Editorial to special issue on Ethics in Genetics https://pubmed.ncbi.nlm.nih.gov/35575814/?utm_source=Firefox&utm_medium=rss&utm_campaign=None&utm_content=1P7PR1QO6ISexT5eZNQgNDQ80oYg-rBit4RG-og5RQBEMglgkv&fc=None&ff=20220517072021&v=2.17.6 pubmed: (((Genetic*[ti] OR G... urn:uuid:ca73756d-9668-2d08-83cf-d996054af735 Mon, 16 May 2022 00:00:00 +0000 No abstract <div><p style="color: #4aa564;">Hum Genet. 2022 May 16. doi: 10.1007/s00439-022-02454-9. Online ahead of print.</p><p><b>NO ABSTRACT</b></p><p style="color: lightgray">PMID:<a href="https://pubmed.ncbi.nlm.nih.gov/35575814/?utm_source=Firefox&utm_medium=rss&utm_content=1P7PR1QO6ISexT5eZNQgNDQ80oYg-rBit4RG-og5RQBEMglgkv&ff=20220517072021&v=2.17.6">35575814</a> | DOI:<a href=https://doi.org/10.1007/s00439-022-02454-9>10.1007/s00439-022-02454-9</a></p></div>